WEBINAR 95th ICREA COLLOQUIUM ‘For more and Better Science. Big and Small Data Governance, Management & Sharing’

ABSTRACT

Speakers: ICREA Research Professors Arcadi Navarro (UPF) and Fernando Vidal (URV)

When: 15th of Juny 2021, 18:00h

Where: Zoom

Abstract: 

Modern science requires data sharing in order to make accelerate progress. The COVID-19 crisis has painfully demonstrated the critical value of open data and open science for scientific discovery, particularly when time is of the utmost importance.

To ensure that open science and data sharing become standard, the scientific community, and society at large, need to find delicate balances between at least two human rights: the right to participate in science (Article 27 of the Universal Declaration of Human Rights) and the right to privacy (Article 12). So we have to work hard to remove barriers that restrain effective data sharing, ensuring that this is done according to extant legislation (for instance, GDPR in the EU) and bearing all human rights in mind.
 

We will discuss several on-going initiatives that are trying to take as much data as possible out of institutional or jurisdiction silos and store it into an open, connected and FAIR (Findable, Accessible, Interoperable and Reusable) environments, illustrating this world-wide effort with examples from genomics, anthropology and healthcare.